Iskustva roditelja djece umrle od malignih bolesti sa psihološkom podrškom tijekom bolničkog liječenja i palijativne skrbi

master's thesis

• Title (english): Experiences of parents whose children have died of malignancies with psychological support during hospital treatment and palliative care
• Author: Margareta Kovač
• Mentor: Nataša Jokić-Begić (mentor)
• Committee member: Gordana Keresteš (predsjednik povjerenstva)
• Committee member: Nataša Jokić-Begić (član povjerenstva)
• Committee member: Blaž Rebernjak (član povjerenstva)
• Granter: University of Zagreb; University of Zagreb, Faculty of Humanities and Social Sciences; (Department of Psychology); Zagreb
• Defense date and country: 2019-09-30, Croatia
• Scientific / art field, discipline and subdiscipline: SOCIAL SCIENCES; Psychology; Clinical and Health Psychology

Abstract

Cilj ovog rada bio je stjecanje uvida u iskustva roditelja sa psihološkom podrškom tijekom liječenja i palijativne skrbi za njihovo dijete, koje je umrlo od maligne bolesti. Polu-strukturiranim intervjuom ispitano je 50 obitelji sa iskustvom gubitka djeteta radi maligne bolesti. Intervju je sadržavao 105 pitanja, od kojih dio zatvorenog, a dio otvorenog tipa. Korišten je mješoviti istraživački pristup koji objedinjuje kvantitativne i kvalitativne podatke već u fazi njihova prikupljanja. Kvantitativni rezultati istraživanja pokazali su da postoji općenito nezadovoljstvo roditelja dobivenom psihološkom podrškom tijekom liječenja i palijativne skrbi za njihovo dijete. Kvalitativni rezultati ukazuju na razloge takvog nezadovoljstva, među kojima su rijetka i neadekvatna komunikacija psihologa s oboljelom djecom i njihovim roditeljima te nedostatak stručnog znanja i iskustva u području psiho-onkologije. Zaključeno je kako postoji potreba za uspostavljanjem standarda skrbi u Republici Hrvatskoj te dodatnog stručnog obrazovanja za psihologe zaposlene na dječjim hematološkim i onkološkim odjelima. Izložene su praktične implikacije i ograničenja ovog, te dane preporuke za buduća istraživanja.

Abstract (english)

The aim of this paper was to gain insight into the experiences of parents with psychological support during treatment and palliative care for their child who died of a malignant disease. A semi-structured interview was conducted with 50 families who have experienced loss of a child because of malignant disease. The interview contained 105 closed-ended and open-ended questions. The research used a mixed approach that combined quantitative and qualitative data in the phase of data collection. Quantitative research results have shown that there is a general dissatisfaction among parents with received psychological support during treatment and palliative care for their child. Qualitative results indicate the reasons for such dissatisfaction, including rare and inadequate communication of psychologists with diseased children and their parents, and lack of expertise in psycho-oncology. It was concluded that there is a need to establish standards of care in the Republic of Croatia and additional professional education for psychologists employed in pediatric hematology and oncology departments. Practical implications and limitations of this study are outlined, as well as recommendations for future research.

• Keywords: dječja psiho-onkologija; dječja onkologija; dječja palijativna skrb
• Keywords (english): pediatric psycho-oncology; pediatric oncology; pediatric palliative care
• Language: croatian
• URN:NBN: urn:nbn:hr:131:334781
• Study programme: Title: Psychology; Study programme type: university; Study level: graduate; Academic / professional title: magistar/magistra psihologije (magistar/magistra psihologije)
• Type of resource: Text
• File origin: Born digital
• Access conditions: Open access
• Created on: 2019-10-22 08:55:51